My journey through life with HIV and HEP-C .

Friday, March 27, 2009

Cruel, conceited, self obsessed.....ignorant


That describes my day as a human being trying to get through this Medical nightmare. You really need to know who your friends are if and when you decide you want to be honest and tell the people who "love" you about what your going through. And who will be the first one to lend a hand when they need it ME!!! I honestly on my very own life swear I wouldn't turn my back on anyone who's sick and needs something .


When will the time come that we realize we are all in this together ?


And still my Blessed be to all.

Tuesday, March 24, 2009

Its a matter of weeks....

And this treatment will be done , its like losing a coworker or something . I can't wait to see how it feels to not feel bad .Its getting exciting planning ahead without having to plan for my injections or days I will miss because I am so sick. Certainly has put a new twist on my life for the better in so many ways . Its all good ! Oh!!!!! be on your best raincoat behavior my Dr informs me syphilis is on the rise in Boston .. Protect yourselves !




Brightest Blessings

Saturday, March 21, 2009

What ? another Saturday....


I have probably bitched about this before but the injections were so painful this time. You would think after all this time I would be a pro but...I first couldn't get the needle to go in so once it had punctured my skin the interferon started flowing, and stinging , so I had to Jam it in quickly, ouch ouch blood everywhere. What a dunce. The day after is yet oh so enjoyable. I can't eat, trying to drink water and its going right through me . ARRRGGG I hope something isn't wrong because I have never had a reaction like this . Maybe its my payback for such smooth sailing for so long.

I will once again lay low, cold packs and a shower then take some sedatives so I can sleep the grossness off. I see my Dr Tuesday so if this lingers longer than then she can take it from there.

Hope you're all well. Blessed Be ,
~S~

Tuesday, March 17, 2009

Tuesday the weather is gettin better!!!



Well all is well here, great weather makes me feel good no matter how I actually feel. 6 weeks left and no more needles and hopefully the side affects will go away as well. I still have to take my HIV meds but after the pegasis and interferone it's like asprin! Hope everyone is well.



Brightest Blessings!

Thursday, March 12, 2009

wow what a night !

So I went to Fleetwood Mac as usual they rocked like no other. Had a really good time, but I am making up for it today. Just going to lay low try and take my Meds.


Blessed be all!

Tuesday, March 10, 2009

what a day


It was really nice today so I decided to get out and take some pictures. I have been wanting some good city pictures. I walked and walked and shot and shot. Went to the top of the Prudetial for some awesome pitures. I hope they are good. Now I have a fever of 100 and kinda shaky. I think I may have overdone it a little. So I am in bed totally medicated. I have to feel better , tomorrow is Fleetwood Mac and there is no way in @#$$ I am missing that. Rock on golddust woman!

Brightest Blessings

Tomorrow is also a day to accomplish tasks you need to get done, or start a new project

Sunday, March 8, 2009

Well life is full of changes...


While I had all my blood work done on Friday, all is well......un - capital " D"- tectable. Sounds better when you say it. I have come a long way and am to happy about the progress I have made. I remember starting all of this saying to myself, "Self it is going to be all the meds that kill me not the viruses, but the meds." That was in the old days (80's) where I just saw my loved ones shrivel and take their last breaths (too many, too soon) .
Those days are far behind us, the medications now have come so far, I am living proof. And it will only get better........my sisters sons may never have to go through this, their children won't.

Last of all I have to say So Long to a beloved part of my team. "C". You will be so missed .
I hope the road you walk brings you to the treasure you deserve.

Brightest Blessings to all

Thursday, March 5, 2009

Do you like who's caring for you?

Funny......well maybe not so, but I went to go give my blood. Love my Doctors. Love going there . It's become like my other family, I can tell them anything and they me. It is so important to trust and enjoy your Doctors and nurses. I cannot say enough good things about my team......well I can but it would fill this entire blog and more .
I needed time, I got it. I had canker sores due to the Ribshere. My Doctor found something to make them feel better and eventually go away. Well if you need a Doctor I have a link to my team and I am willing to share .!

Blessed be

Tuesday, March 3, 2009

arggggg,,,,,

This is an off procrit week and this week I totally feel the difference. Everything aches and I am so tired I slept the last two days . No other symptoms but the usual , no strength , no appetite. I cannot wait till I have better things to say other than complaining. I am so grateful that the meds are working and I will be ok. And that is what I should be concentrating on. As mom would say "quit your bitchin".

Blessed be ..