Friday already!!!

Gosh what a bad week this was between the fog in my head and trying deal with everyday stuff.
Its been one of those why bother times. I am sure that those of you going through this can get me .
Well its injection night , while I have friends here from out west have not been able to do much with them. And tonight is no different .

Bright Blessings!!

Sunday right?

No procrit this week, so all I can do is lay here in pain. I can't eat much either so we are feeling a bit weak. I told My Dr how much the procrit helps these damned side effects. She raised a brow so she heard me ! I at least got some tax work done for some friends, funny I hated math as a student and now I just whip them out.

I cannot say enough about what my sister does for those poor animals. I have seen first hand how she brings them back to life with all the love she can muster up. I think everyone in our family has at least one rescue animal in our home. There are so many that need help! Share the love.

Blessed Be....

Strange pain Saturday

Last night was yukky........I did my pegasis and immediately went to sleep. I woke up several times and I was in so much pain , I could not move. I just keep thinking May !!!! I will be done or I will be done!

On a brighter note, my sister and her partner have recently become involved with the Poodle Rescue of Maine organization. They had 3 standard poodles already - all of them rescues - and they got a call from the rescue organization about an 8 year old male living in horrendous conditions. They are now fostering him (you can see the story of Ranger here). Along with Ranger, there were a total of 10 other standard poodles taken out of this situation - 8 of them 5 month old puppies. The organization is brand new, and as a result trying to get the word out about it's existence and raise some money for the vet bills happening as a result of the health problems these dogs have. To aid in this, mrs beadsley of maine, my sister's jewelry business, is donating 100% of all sales from tomorrow, January 25th through February 6th to Poodle Rescue of Maine. Take a look, buy yourself some bling and take satisfaction in the knowledge that your money is going towards the health and new life for some very sad dogs!

Here is Ranger - before and after.






Brightest Blessings!

Wednesday hump day

I am so tired and flu-ish today. It has been a long week since Fridays injection. I have been sicker than usual, of course pushing myself to do this and that probabaly doesn't help. I think my Dr is worried about my breathing as I have had 1 test this week and another scheduled for next week. Not really sure where this is going but she is as usually on top of it. I get out of breath easy now.

So meanwhile I am still finishing up projects I have been putting off....and sleeping alot.

Blessed be!

GOD BLESS AMERICA!

Well I may have no sign of the bastards....

...........but the agony continues until May. I feel like death this weekend. I can barely lift my head from the bed. Maybe by Tuesday my pains will fade, the nausea will disappear. It's all part of the deal.

I won so @#$% 'em.......bring it on!!!

Blessed Be .

GET TESTED, GET REAL, LETS END THIS SHIT!!!

Hows that for a statement ? Feeling a little soapboxish right now . I and my fabulous team at Tufts Boston have eliminated both of my Diseases. They are both undetectable. So I tell you this if you had the thought.....GET TESTED!!!!! Stop the 'what I don't know won't hurt me'. I cannot tell you all enough how much this has changed my life .You may think 'oh god I have this dreadful disease why bother'? Why wouldn't you think that....change is hard and with these conditions comes changes. You can chose the path , you can beat it .

There are thousands of great DR's out there who care and who know how to treat patients.
Look at my links, make some calls, follow through...Lets all end these diseases !!!! GET TESTED!
Thank you my team! Thank you for letting me take my time . Thank you, you're all angels!

Brightest Blessings everyone!

Have a wonderful weekend.

If you ever did believe.............

In miracles....today's plane crash in NYC is one. Imagine landing in that cold dirty water . For everyone aboard
that plane their lives changed that second. That is going to live on for them and for many of them
a door has been opened for them.

Life has a way of changing in a mere second, but there is always a reason . As for me and my fight all is well . I am going to the Dr's tomorrow for several checks and minus's . These diseases
have been my life change, my door opened .

Blessed be...........

Tribute to a strong woman.

I may not know you by face,
yet we have met through this place.
I read your blog, and you mine.
we encouraged one another through this and look we are fine.
You gave me strength through words, and praise.
Thank you my blog friend, thank you and I am so glad for you it's the end.

Bless you and all you are!

oh my achin @#$

LOL.....I passed on the procrit last night, now I remember why they had me on it. While I am happy to be able to get off one drug I am miserable. My headache is banging like I drank a liter of grey goose last night. I went to the store , we are having yet more friggin snow tonight. I decided I would walk the 40 minutes it takes to get there. I felt great when I got there....did my thing. Got home made a fab Itaian spaghetti feast. Now I am too tired and not hungry. Oh well, I am sure my roomate will eat it after her liter of red wine. Fun huh ??? Tonights full moon is going to be awesome if you can see it..... Magical and full of firsts.

Blessed be All!!

So they say its Friday again........

Oh it comes faster than a bullet.....guess what buddy, time for another hole in your stomach. Now they have me on the procrit only every other week, scary because it dulled some of the side effects of pegasys. We shall see. It's colder than Sara Palins attitude outside. I have much to do and no energy to do it, and still the headaches. My Dr says it's a normal symptom from the ribshphere and pegasys. Good thing is I was able to gain some weight so that's a plus ! Cold compress for the headache and standing on my head for 10 mins helps the pain.Then again sometimes it does the opposite .

Brightest Blessings All!!

when it snows , it pours, then there's ice.

ARGGGGG this weather is not helping me a bit.The cold and snow makes the flu symptoms rise to dominate. I have been ignoring all of it and started framing and matting my photos, and working on various other projects I had in mind. Oh, the new pic in my profile is from New Years Eve . (L) I got chicken and didn't shave it all off. I still may. The headaches are back ( MRI?) anyone?

So I will have to can my trip to Savanah for now , oh how I hate that. But health comes first and March 11th is Fleetwood Mac here in Boston. Another birthday gift! Life is good. Hope all is well with everyone.
Blessed be!

If it walks like a duck......

Looks like I am getting my ass kicked this round . I just woke up at 12:30pm and poured my pills down . I feel like I have been playing twister all night . Oh well guess I will try a hot shower in a bit.
Blessed be,










wk-28

New Years, New Birthday, New beginings...

I sound like Oprah, she just needs to lose weight , I have to slay the devil that lives in me . I will and with fire . Today is injection day LOL like its a special day of the week well in reality it is , but as of now I am not making a big day of it, its just another day .

I had the best new Year ever, my two very good friends literally took me out for the time of my life
for a moment I got to forget I am sick , that I am not a healthy man. We painted the town and then stayed a grand hotel for the night . I had to wake them up for the for the 12:00am cheers. It was a long night for all of us ( Thanks guys your the Best). I came home and slept the entire day
and night I was exhausted . I feel good today . New Beginings are excilarating.

My hopes, dreams and blessings go out to the world , Let peace begin . Blessed Be