Happy halloween, trick ot treat

Well I say Trick. All's well here on this day of Samhain .

I am having issues with taking all my meds, the HIV and the HEP-C. I got violently sick twice this week, so I decided I am going to space them all out. I now take 18 pills a day (not to mention my 2 lovely injections, Procrit is working well). I am going to take a pill, eat, take a pill, eat, or drink something sweet. There....problem solved! I am still taking all the medication, it just takes a bit longer, and I eat all day and hopefully gain my weight back. Well I hope you all have a fantastic evening . Blessed be..

Well if it isn't so....

I have a great gal who has written to me twice. I usually get very sick in the am and she suggested eating something fatty before taking my Ribasphere (sounds so nuclear, feels it as well). So today I ate a bowl of ice cream before taking them...and it was so much better!!! Thanks "L" hang in there! .........and thank you for the advice!! Hey not so bad......Ice Cream for breakfast! Bright Blessings all.

Saturday ...ohhhh

The injections were fine - usual stuff . I just have to keep thinking, yes it will pass, it will all pass. I feel like that man that walks around in a fog till he has theraflu lol. I missed my psychiatrist appointment yesterday. I took all my pills and went. I usually wait an hour but I was running late. The pills need to settle first, there wasn't time so I got sick on my way there . That's mostly my HIV drugs that do that.









Gosh when I first started my HIV drugs they made me awfully sick .. it only lasted 2 months now its nothing . But I do have to chill for a bit or I will get sick.

Well it's my roommate / best friend's 65th b-day shout out to her , unfortunately I won't be partying with them today I can't get out of bed.

WOW it's Wednesday!

I have to say the procrit has helped ALOT!!! I had my bad days of course, though not as bad as many weeks past. I am thankful for any thing that takes the pain and nausea away.

My only complaint is Dell , If I had the chance to buy it all over again it would not be a Dell.. Maybe I can start a blog beginning a revolution against Dell. I think I spent at least 24 hours on the phone with them...

But I am not complaining. I have my health and it's getting better



Blessed Be

Well its Sunday.......................

Blankets back over my head . I am so sick , even doing the procrit . The aches and pains are so yukky. I spent the entire afternoon feeling like crap trying to get my computer fixed with someone in a far off land ( guess I should have asked for someone in America)......and yet none of us have jobs..

Well now I have a completely clean computer and no back up files (yes I did back up) Everything lost . Anyway I wish I had something upbeat to say..... Oh I had accupuncuture Friday. I think everyone should at least try it once, I felt relaxed and calm when I was done. Brightest blessing!!!

Oh NO don't say so......

Its Thursday and I feel like it's the day after Friday. I have a super duper head ache not to mention other places in my poor body. I don't understand how I can feel ok one day and the next day its a complete 360. And I start procrit tomorow, thank goodness something to make me feel better!

Oh well I have to suck it up its my moms 75th birthday and she's coming for lunch....too bad I couldn't serve peanut butter and jelly sandwiches. But I am a great good cook so she is expecting something fabulous, and she came all the way from Baltimore.

Yeah! fun for all .. Brightest Blessings everyone !

Sunny , Sunday

Feeling good, but the weather is making me feel even better. The Dr. did prescribe testosterone for me, that may be helping as well as the blood transfusion I had on Monday. Let's just say the universe is being extremely good to me. I went on a photo spree which I haven't been able to do in a long time. The energy is falling but that's okay, cause we had a great day! I hope you all found something to love about today...Blessed be...

Argggggggg the interferone hangover.

I still think Friday night is the best time to do the shot, but in the scheme of things it's going to make me sick no matter. But I think soon it will give me more good days than bad. I start the Procrit next week....well we shall see.
It is an absolute stellar day today. Great day to take pictures. The trees look like works of art.

Well if I wasn't here injecting this stuff..

Probably be here re-painting my room. But its a done deal, its in my belly. Starting its attack on the HEP_C.
Well I continued to have some energy left this morning so I washed Mr. He stunk like a dog since leaving Maine. He has enjoyed it. Now he's all attitude, such a male..
Feeling very tired now after the shot. Bright Blessing!

Take some time to relax and be good to yourself there is nothing wrong with that.

hmmmm good day!

I woke up freakishly refreshed....what a normal day used to be like. I had energy, I felt good. The transfusion worked, it gave me some energy back, more of how I used to feel. So I ran around like crazy, cleaning this, cleaning that. Well I still had shortness of breath but nothing like before.
Then Pooch and I went for about an hour walk. He was panting when we got home, not me.
I am starting a new drug. As you know, the red blood cells need some pushing around, so I start Procrit, probably next week some time. Of course I read the side effects .....
I can really thank the universe for the great day I had today, how I felt, what I accomplished. It's all good ..Blessed be to all!

Tuesday, the day after the infusion,

Well it was just like having an IV in your arm only this was feeding me red cells from someones blood, someone I didn't know. This is of course what I thought while watching the precious red liquid drip into my arm. Wondering who's it was, one of the nurses I see everyday or the artisan woman who takes my cans and bottles for her art supplies. No matter, I am grateful,very grateful someone donated their blood.

Well lets just say I was planning to go home and relax with mr man. The universe had a better idea for me......a complete and unexpected drama .

Sorry, some things I do keep quiet about .

Today was good. I felt ok still very short of breath and didn't feel like doing much so I sketched out how I am going to re-do this place when I am feeling better. Brightest blessings all..

OMG worst hangover yet from the injections

Well waking up to the usual glue mouth I get out of bed to get water and my head is actually gonna blow off. I don't know if I told you people WATER IS OUR FRIEND! So I take my 13 pills, make some coffee and lay down again. I have not been here since the end of June. Let me just say I am anal about the way my house looks, feel, smells.

I decided the one good thing I will save energy for is to go food shopping. THANK goodness my roomate and bff went with me. I love her dearly but shes 65, a slob and quite the wine taster. I will wait till after my transfusion to attack the house work...

Anyway could have been worse I did throw up when I got home ...took me 30 minutes to regain my breathing.

I should try some reike, my friend does it but she has a cat and I am TOTALLY allergic to them... so she said she will come here for me (she's a great friend) I luv ha ... ok....Brightest blessings

Interesting day.

I was walking the pooch on a longer walk than usual. We both need the exercise! I had to keep stopping and sitting. I was getting short of breath. I couldn't do anything but sit and try and catch my breath. I even blacked out for a second. That was scary doo's. So I decided I better not go to acupuncture. I e-mailed my fabulous Dr. immediately. She called me right back of course.


"I have two bits of info for you" . 1. Monday you need to come in and have a blood transfusion. My red cells are on some kind of wild ride right now . But the the good thing is my HIV is still invisible, undetectable well then THAT IS AWESOME.

Tonight is injection night . I told my roommate we could connect the dots when its all over, and see what it would look like as a tattoo. LOL

Well another blessed be for all of you . Think the truth, Be the truth! You don't have to carry on this damned virus (or viruses). We can stop it .

another drug into the potion!

Well another long informative day at the doctors went really excellent for me. As you know there are side effects to all these medications and of course I have studied them. (and get most of them ) I am now anemic, so this means for me lots more fatigue, major shortness of breath (because your body needs the oxygen from the red blood cells). Which is better than what I had immediately thought. I have just been so weak and fatigued lately, I thought it could be pneumonia . YEAH its not!
I am starting acupuncture Friday and am interested to see how that goes. I want to learn and try anything that may help. I have lost 23 pounds since July. Time for complex carbs, pop-tarts, peanut butter and fluff. No I shall adjust my food habits and gain it right back.(too easily) Blessed be.